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Silver Mine B [clear filter]
Friday, July 22
 

10:15am MDT

Understanding Your State's Disability Resources
Limited Capacity seats available
This session will help attendees identify the systems available to support children with disabilities in their state.

Mr. Goldin is presenting this session remotely. Questions will be taken from the audience in the conference room by the moderator. You may also watch the video stream on the Sched app from your smartphone.
Moderators
avatar for Nicole Murray

Nicole Murray

Vice President, Development, Epilepsy Foundation
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and... Read More →

Speakers
avatar for Tal Goldin, Esq.

Tal Goldin, Esq.

Supervising Atty., Core Services & Discrimination, Disability Rights Montana
Tal M. Goldin is a Helena, Montana based civil rights attorney. He is the supervising attorney for the Core Services and Discrimination Unit at Disability Rights Montana (DRM), the State’s Protection and Advocacy organization. Tal is the former Director of Advocacy at Montana Legal... Read More →

Friday July 22, 2022 10:15am - 11:15am MDT
Silver Mine B
  Community and Adult Life

11:30am MDT

Gait lab analysis for children with hemiparesis
Limited Capacity filling up
Moderators
avatar for Nicole Murray

Nicole Murray

Vice President, Development, Epilepsy Foundation
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and... Read More →

Speakers
avatar for Bruce MacWilliams

Bruce MacWilliams

Shriner's Hospital for Children, Motion Analysis Center
Dr. MacWilliams' research interests center around applications for pediatric gait analysis. These include developing new tools, models and techniques for movement analysis, the study of clincial gait pathologies, and clinical outcomes studies.
avatar for Amy Shukra, DPT

Amy Shukra, DPT

Physical Therapist, Shriner's Hospital for Children, Motion Analysis Center

Friday July 22, 2022 11:30am - 12:30pm MDT
Silver Mine B
  Therapies and Development

2:00pm MDT

Navigating adulthood: Building lasting friendships, interview skills, and advocacy tips
Limited Capacity seats available
Growing up and leaving high school can be a challenging time for a teen or young adult with neurological differences. This session will introduce you tip on how to express your desires in social and professional settings, explore education and career opportunities, and determine which jobs are right for you.
Moderators
avatar for Audrey Vernick

Audrey Vernick

Director, Patient and Family Advocacy, The Brain Recovery Project:
Audrey Vernick serves as the Director of Patient and Family Advocacy for The Brain Recovery Project: Childhood Epilepsy Surgery Foundation. Her role is helping patients after epilepsy surgery access medical, educational, vocational, transition, and community living resources across the lifespan. She supports patients and their families in navigating systems, connecting with services, and understanding all areas of disabili... Read More →

Speakers
JJ

Jade Jorgenson

Statewide Parent Consultant, Utah Parent Center
avatar for Jennie Dopp

Jennie Dopp

Transition University Project Coordinator, Utah Parent Centerr
Jennie Dopp is the Transition University Coordinator for the Utah Parent Center (UPC). Jennie is from Layton, Utah, and holds degrees from Weber State University and Southern Utah University. Jennie is a philanthropist at heart and enjoys trying to make a difference in the lives of... Read More →

Friday July 22, 2022 2:00pm - 3:00pm MDT
Silver Mine B
  Community and Adult Life

3:30pm MDT

Managing chronic headaches after surgery
Limited Capacity seats available
Children and adults who have had epilepsy surgery often complain of chronic headaches. This is especially true after craniotomy. This session will explore various treatments and technologist for headache management. 
Speakers
avatar for Angie Wathan

Angie Wathan

Montana Empowerment Center
avatar for Anna Esparham

Anna Esparham

Director, Headache Treatment Center, Children's Mercy
Anna Esparham, MD is a triple board-certified physician in integrative medicine, pediatrics, and medical acupuncture. She also has received additional certifications in clinical hypnosis and aromatherapy to apply as many pediatric integrative medicine approaches to help children and... Read More →

Friday July 22, 2022 3:30pm - 4:30pm MDT
Silver Mine B
  Medical
 
Saturday, July 23
 

2:00pm MDT

Minimally invasive surgeries
Limited Capacity seats available
Minimally invasive epilepsy surgeries do not require a craniotomy. They are typically done through holes in the skull with instruments like lasers and endoscopic tools. This session will cover the various minimally invasive surgeries offered to children with drug-resistant seizures, including disconnections and after failed initial surgeries.
Moderators
avatar for Monika Jones, JD

Monika Jones, JD

Executive Director, Pediatric Epilepsy Surgery Alliance
Monika Jones is founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (formerly known as The Brain Recovery Project.) Her first son, Henry, was born with total hemimegalencephaly – a rare unilateral brain malformation which caused him to have hundreds of seizures... Read More →

Speakers
avatar for Sandi Lam

Sandi Lam

Division Head, Pediatric Neurosurgery, Ann & Robert H. Lurie Children's Hospital
Dr. Lam is a pediatric neurosurgeon and a leading specialist in the areas of pediatric cerebrovascular surgery, epilepsy surgery and craniofacial surgery with a focus on minimally invasive and endoscopic techniques. In addition to her clinical experience in complex surgeries, her... Read More →
avatar for David Adelson

David Adelson

Chief, Pediatric Neurosurgery, Phoenix Children's Hospital
P. David Adelson, MD, FAAP, FACS, FAANS is the Chief of Pediatric Neurosurgery at Phoenix Children's and the Diane and Bruce Halle Endowed Chair for Pediatric Neurosciences. Receiving his undergraduate and medical degrees from Columbia University, he completed his neurosurgical residency... Read More →

Saturday July 23, 2022 2:00pm - 3:00pm MDT
Silver Mine B
  Medical

3:15pm MDT

Individual Education Plans After Epilepsy Surgery: An Introduction
Limited Capacity seats available
Our Global Pediatric Epilepsy Surgery Registry reveals that 90% of children receive special education after surgery. This session will provide you with an overview of the IEP process.
Moderators
avatar for Nicole Murray

Nicole Murray

Vice President, Development, Epilepsy Foundation
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and... Read More →

Speakers
avatar for Monika Jones, JD

Monika Jones, JD

Executive Director, Pediatric Epilepsy Surgery Alliance
Monika Jones is founder and Executive Director of the Pediatric Epilepsy Surgery Alliance (formerly known as The Brain Recovery Project.) Her first son, Henry, was born with total hemimegalencephaly – a rare unilateral brain malformation which caused him to have hundreds of seizures... Read More →

Saturday July 23, 2022 3:15pm - 5:00pm MDT
Silver Mine B
  Education
 
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